Fibromyalgia

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Fibromyalgia is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Fibromyositis
  • Fibrositis
  • Muscular Rheumatism
  • Musculoskeletal Pain Syndrome
  • Nonarticular Rheumatism
  • Periarticular Fibrositis
  • Rheumatoid Myositis
  • Tension Myalgia

Disorder Subdivisions

  • None

General Discussion

Fibromyalgia is a chronic disorder characterized by pain throughout much of the body. The pain may begin gradually or have a sudden onset. Other symptoms are muscle spasms, fatigue, muscle tissue stiffness and non- restorative (unrefreshing) sleep. The exact cause of this disorder is unknown.

The terms Fibrositis, Fibromyositis, Periarticular Fibrositis and Rheumatoid Myositis are still being used by many to describe this condition. The ending of "itis" on each of these terms is actually incorrect. "Itis" means inflammation, and there is no inflammation in Fibromyalgia. The term Fibromyalgia has now become the accepted term, but many people continue to be diagnosed with the other synonyms. Tension Myalgia is another synonym that is currently being used.

Resources

National Chronic Fatigue Syndrome & Fibromyalgia Association
P.O. Box 18426
Kansas City, MO 64133
Tel: (816)737-1343
Fax: (816)524-6782
Email: information@ncfsfa.org
Internet: http://www.ncfsfa.org

American Chronic Pain Association
P.O. Box 850
Rocklin, CA 95677
USA
Tel: (916)632-0922
Fax: (916)632-3208
Tel: (800)533-3231
Email: ACPA@pacbell.net
Internet: http://www.theacpa.org

American Autoimmune Related Diseases Association, Inc.
22100 Gratiot Avenue
Eastpointe, MI 48021
Tel: (586)776-3900
Fax: (586)776-3903
Tel: (800)598-4668
Email: aarda@aarda.org
Internet: http://www.aarda.org/

Arthritis Foundation
P.O. Box 7669
Atlanta, GA 30357-0669
USA
Tel: (404)965-7627
Tel: (800)283-7800
Email: arthritisfoundation@arthritis.org
Internet: http://www.arthritis.org

Fibromyalgia Educational Systems
500 Bushaway Road
Wayzata, MN 55391
Internet: http://www.fmsedsys.com

NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
1 AMS Circle
Bethesda, MD 20892-3675
USA
Tel: (301)495-4484
Fax: (301)718-6366
Tel: (877)226-4267
TDD: (301)565-2966
Email: NIAMSinfo@mail.nih.gov
Internet: http://www.niams.nih.gov/Health_Info

National CFIDS Foundation, Inc.
103 Aletha Rd
Needham, MA 02492-3931
Tel: (781)449-3535
Fax: (781)449-8606
Email: gailronda@aol.com
Internet: http://www.ncf-net.org

CF Alliance
P.O. Box 9204
Bardonia, NY 10954
Tel: (845)548-0313
Fax: (845)792-0880
Email: cf_alliance@ yahoo.com
Internet: www.cf-alliance.org

Eastern Paralyzed Veterans Association
http://au.groups.yahoo.com/group/Erythema Nodosum/
Email: EryhemNodosum@yahoogroups.com.au
Internet: http://www.au.groups.yahoo.com/group/ErythemaNodosum

MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
USA
Tel: (920)336-5333
Fax: (920)339-0995
Tel: (877)336-5333
Email: mums@netnet.net
Internet: http://www.netnet.net/mums/

Erythema Nodosum Yahoo Support Group
Internet: http://health.groups.yahoo.com/group/erythema_nodosum_Group/

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Email: ordr@od.nih.gov
Internet: http://rarediseases.info.nih.gov/Default.aspx

Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: getinfo@madisonsfoundation.org
Internet: http://www.madisonsfoundation.org

Autoimmune Information Network, Inc
PO Box 4121
Brick, NJ 08723
Tel: (732)664-9259
Email: autoimmunehelp@aol.com
Internet: http://www.aininc.org

Irish Chronic Pain Association
Coleraine House, Coleraine St.
Dublin, 7
Ireland
Tel: +353 1 804 7567
Fax: +353 1 8047567
Email: info@chronicpain.ie
Internet: www.chronicpain.ie

KickAS.org
11688 North Sage Brook Road
Oro Valley, AZ 85737-7342
Tel: (520)544-3023
Fax: (520)544-3023
Email: kickas@gmail.com
Internet: http://www.kickas.org

European Society for Immunodeficiencies (ESID)
c/o Dr. Bodo Grimbacher (ESID Board Member)
Division of Rheumatology and Clinical Immunology
Department of Medicine, University Hospital Freiburg
Hugstetter Strasse 55
Freiburg, D-79106
Germany
Tel: +31 73-6992965
Fax: +31 73-6992948
Email: info@esid.org
Internet: http://www.esid.org

AutoImmunity Community
Tel: (919) 552-9057
Email: bandrews@autoimmunitycommunity.org
Internet: http://autoimmunitycommunity.org

For a Complete Report

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

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